First time!

So much has gone on the last week its unbelievable, first Jonathan pulled his tube out again at 5am last Sunday however I wasn't about to put it back in since we were going to get our Christmas pictures. Jonathan did great he smiled and was in an excellent mood the whole time Justin and I wondered what was up, this is how things used to be but lately he has just been miserable! O.k so we didn't complain we got our pictures and we were able to put him down so Justin and I could get pictures of us, again he did great he just smiled and cooed at the person. Then we left and went to get some donuts and cider he didn't cry while in the car seat very, extremely unusual since he hates his carseat! We drove around because we took advantage of this he fell asleep and we just drove for two hours, he slept while we talked that hasn't happened in so long! Well he woke up but still happy as can be, went home and then it happened I had to put the tube back in, he was eating but way less then what he needs! He gagged and gagged and it came up and out his mouth. O.k calm down I'll do it again and for the second time he did the same thing only turning blue he caught his breathe and about 30 mins later he was fine, there was in NO WAY I was doing that again! So we thought we would go to the hospital and they could put it in, but Jonathans NI nurse called KIM and she told us to come over and she will put it in she didn't want him catching anything! I was happy to see Kim and her friend was over which is another nurse of Jonathans Carole she is great to! Well they attempted to do the tube thingy and again Jonathan screamed , cryed, kicked and held his breathe, Kim pulled it out and said there is no way your getting this tube back in this kid! So we talked about the G word (G tube) and I just don't want it I feel its a HUGE step backwards. we went home hoping and praying he don't lose any weight. That night I prayed that GOD would guide me and if this is what Jonathan needs to show me! We went to Beaumont E.R thinking he was getting a G tube since they wouldn't be able to put it back in! Well they got it back in (with a bit of a fight)and we stayed there for about 3 hours to see how it would work, we went home with the ng tube and he is back to crying all day and night!

He started aqua therapy it is great they worked his trunk and he was so calm, he LOVES water! He was really cute too he would kick his legs but he wanted to be held by his p.t Allison she is very good with him! SO I can't wait to do it again I see aqua therapy really working for him and that will be great for next summer when he can use our built in pool that we didn't go into this year!




He also is now being seen by a chiropractor and it really works, he is very different from you typical chiropractor he just moves certain vertebrae in his neck, it takes a whole 5 mins and Jonathan really doesn't cry and it seems to be working! I really like this chiropractor he is in farmington and he has some really great stories of kiddos he has helped one being in U of m and the baby was in Peds and there for a week no explanation of why this baby wouldn't grow he was labeled ftt (failure to thrive) Dr. C went and did a couple manipulations and the baby started to take his bottle and consume what he needed he went home the next day, to this day he is doing great and Dr. C still sees him periodically to maintain his posture. We are going 3 days a week and I do see a difference and its no pain to him so we will continue this as well as our 4 days a week of therapy!!



O.k now for the sucky thing. Jonathan has pneumonia in his left lung!! We were just told today! Wednesday when he went to aqua therapy he had a little cough I wasn't real concerned but later in the day our ped called to tell us more metabolic test came back (all normal) and I told her about Jonathan, she could tell I wasn't to worried and I knew we were going to see her Friday, well thursday came and around 701pm when the ped office is closed of course, he started throwing up, really strange for him but then was fine he was starting to not want anything to eat not even by bolus (oh boy) so I called the on cell doc and she thought it might be croup, we went to see Dr. G and his sat was 96 then they did this nebulizer thing to him and it brought it up to 99 so we went home with that and some steroids to kill that buggy. The nebulizer yea thats a whole nother story he hates it and cries but whats new and getting him to try and stay still ha ya right, but we manage(with two people)! It did seem to work but yesterday he was having a really hard time dealing with phlegm it was so gross and I felt so bad, I just keep sucking out those boogers and giving him pedialyte so he wouldn't dehydrate. He would get so much in the back of his throat he would throw up, he had no fever and after he felt good again but that mommy instinct told I should call the doc today and see what they think, we had an appt. at 145pm his sat was 91 not good Dr. M wanted him to do a breathing treatment and see what we get of course he was an angel for the breathing treatment why does my son do that, I tell everyone how much he hates it and he cries, kicks and squirms but he sat on my lap and took his breathing treatment fine, cryed a little in the end but that was it!!! Well we could only get his sat. up to 95 so we headed downstairs to get an xray, and it showed pneumonia! So we are at home granted it doesn't get any worse he doesn't have a fever and he is now on an antibiotic and we are doing treatments ever 4 hours (lovely). He is sleeping now, yes I said sleeping and breathing great. Pray that it just goes away, this is his first cold ever!!!

Jonathan will be 1 on the 22nd yippee!!