Jonathan is home!

This is a picture right after surgery, notice how red and swollen his face is!


Well its done Jonathan had his g tube surgery and we are at home, but
we had a terrible exsperience. First the doctor again tried to
convince my husband and I to get the fundo and of course I said no. A
friend of mine whos son was also born at the same hospital said this
doctor did her sons hernia surgery and wanted to do a fundo on him
because of his every so slight reflux!
This is the tube that will be replaced in 6 to 8 weeks


Jonathan went back to surgery and it was quick, he had an allergic
reaction to the anastesia(sp?) his face was swollen and very red. He
did very good we got him to his room then he started with some apnic
episodes, scared the death out of the docs, nurses and the nurse
manager we tried to explain this is jonathan and when he is hurting
he does some breath holding but always comes back. Well long story
short we ended up in the NI with one of his old nurses during the
night and one durning the day, before we left peds they had him on 1
liter o2 and when we got to the ICU they pulled of his o2 and he did
fine ( it really helps when the nurses know how your kid is)satted 97
to 100 unless he fussed which was a lot he would drop to low 80s but
bring it right back up. Well his breathing episodes we think were his
reaction to morpine, I am allergic to morphine so we think maybe he
might be because he did a couple episodes but nothing like earlier in
the day. So since they didnt want to give him morphine they made him
suffer through his pain with just plain old tylenol(every 6 hours
errrr) but his nurses were excellent and it was like a family reunion during the night his old nurses just held his little hand and massaged him, (thank you NI nurses my son still loves being massaged, head, feet, hands anywhere because of
his 21 week stay and your loving care!!)
This is what I dealt with all night, my poor little man!


I had it 5am I knew Jonathan needed something else and the poor kid needed to eat he was clearly starving! So at 5 am his nurse paged the resident that finally gave in to giving Jonathan tylenol with codine and he was so mellow after that and we tried out the g tube putting only 40ccs in and he took it like a champ he fell asleep andslept for a good hour!

This is when we told Jonathan he can eat :)

We have been feeding just about 2 ounces every
2 hours and he is handling o.k he is very tired and just wants to be
held and rocked which is fine with me! Yesterday we weaned Jonathan off his medication and he has been his happy self he slept good last night and this morning was wanting more to drink (via g tube) so he is almost back to his full feeds, probably tomorrow. The G tube is a little scary you can see the stitiches which will be removed this coming friday and in 6 weeks from then he will get a button which is almost flush to the skin where this tube is about 4 inches long and very irrating he will be wearing p.js for awhile. I was hopeing to get rid of the long tube and have the button placed before our vaction but it doesn't look like it will happen, oh well. We can't wait till we can put real food into his belly, we are going to wait till he is 1 year old corrected so around mid March or we might wait till after vacation it will be nice not having him strictly on formula!
Thank you everyone that kept us in your prayers, we love you all!