Yes thats right Jonathan finally got his first tooth, the bottom middle one. He was cranky and had a slight temp. I wondered if it could be a tooth but have been telling everyone for the last eight months "I think he's getting his first tooth" but now I can really say it and in a way I am glad its here but in some way I am going to miss that famous toothless grin! Well the next day he was fine and then he started getting a fever again and it was 99.7 which is where it was when his tooth came in so nothing to worry about however a little later my parents called to say it was 100.9 o.k so I know its not a tooth and Justin and I were in Grand Rapids which is about an hour and half away. I told my parents give him some Tylenol and take his temp in about 1/2 hour. Well not good it was 101.9, so we were already on our way back and I called the peds office and it was an ear infection! So the last couple days have been whining and crying from both of us:) He is feeling much better now and I started him on his blenderized diet and we have completely taken him of prevacid which I thought was crazy since he was on a very hefty dose (21mg) but it has proven that he will puke on it or without it! Our GI still can't figure why Jonathan wants to eat but after acouple bites pukes then wants more, however he did eat mashed potatoes the other night and he drank from a real glass and did great! So we will try again slowly. His feeds are going o.k thanks to my online friend Shannon and Jonathan can down 4 ozs in 30 minutes via G tube but that means his tummy is expanding! He is still a peanut but is growing slowly the docs want him at 1000 cals a day to catch up I say yea right and to be perfectly honest every time I try to increase his calories he pukes so I believe his body is telling me that he can't handle anymore and yea he is gaining slowly but he is gaining on his own curve not what is the curve for "average" babies because we all know he is not average he is Jonathan and he is going to grow at his own pace yes he may be 2 and then hit the big 20lbs but guess what we will all be happy cause we aren't all stressed about him not getting enough calories, puking up all his calories and where can we fit an extra bottle in. I now know enough MICRO preemie parents and their kiddos are way below the "average" growth chart but every ones happy and another thing while I am still ranting I really dislike when doctors use the phrase failure to thrive because in my book Jonathan is underweight to their "average growth chart" however his hair is beautifully his skin is the softest, smoothest skin you have every felt, his head is growing his length is growing his nails grow like weeds he pees and poops regularly so how is he failing to thrive? O.k I am done with that!
Another great thing is therapy he is doing very well with his head not completely up but can manage it by that I mean he can control when his head goes down he is using his muscles to lower it and raise it where it used to just flop back! This next part is amazing! Jonathan is trying to walk yes I said walk if we stand him up while we are standing and he is in front of our legs so basically our legs support his head he will pick up his feet in the correct pattern, one leg the other leg and so on I showed the therapist and they were both blown away they said that usually doesn't happen that way! So Jonathan will be getting fit for a stander to help more of his head control. The therapist also commented on how his feet stay flat so that was good too! We are going to start therapeutic horseback riding in May and are very excited about this. The instructor will sit with Jonathan and work on his trunk. And last but definitely not least Jonathan is telling us with his eyes what he wants. The therapist suggested we take pictures of things his bottle, toys, highchair, swing, stroller, etc. and then ask him and see what he does so we have only done this, this past week but its working. I will ask him something and he responds with his eyes or he'll cry but hay I'll take anything! I didn't realize how well he really knows whats going on but his therapist Allison put a rabbit sock on his foot and she put that foot in his mouth and then out and back in and so on for about 5 minutes then asked Jonathan wheres your bunny well he lifted his foot that had the bunny and every time she asked he would show her while keeping his other foot down. So I was a little sceptic since the other foot is his weaker side so so repeated the same process with his other foot then asked him wheres your bunny and holy cow he lifted that foot while keeping his stronger one down! my kids a genius and this is what prompted the pictures and him "talking" with his eyes!I love my boy so much!
1 comment:
Congrats on that first tooth. Every milestone is appreciated with an FTT child.
I know you are a little miffed that the Doctor has "FTT" in your child's records, but it doesn't mean "unable to thrive at all." It is a large category and this description is more about missing milestones than anything else.
We have a different slant on FTT and I urge you to drop by our free, private social network for parents of failure to thrive children.
I'm putting a link to your blog in our site.
Rodger Bailey, MS
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