What a beautiful state, North Carolina is rich in mountains and the air is so clean the people are a lot sweeter, nicer and respectful! The drive was uneventful besides taking the road they warn you not to take because it is full of sharp turns high altitude and some almost one lane roads along the mountain. This would be my fathers idea he thought it would be cool to experience it, uh ya real cool! Well the center is not what I expected but hey its not the outside that counts its what is inside, right?! The house (trailer) we are staying in is o.k but when they offer you mouse traps when you first arrive, I freaked to the point I was going to pay for a hotel but since we are high in the mountains it would be a 40 min ride each way! So I have stuck it out and this is day four oh I am such a city girl! The weather is phenomenal warm days cool nights I am not complaining.
Jonathan is doing great his very first dive went very well. I think he was wondering what the heck this bubble on his head was! The second dive went o.k he freaked out a little towards the end and had a blue spell(breathe holding) but after that did fine, just freaked everyone out! Second day went awesome for all the kids in our group and yesterday was an off day for Jonathan but he did well he actually fell asleep for the afternoon dive. Today we are moving from the 8am group to the 10am group and I am sad because we met two really cool kids but we can still hang out after sessions! So this morning we will be with a different group the plus is Jonathan will be with his "earthly twin" (thanks Jen) Like I have posted in the previous post her little boy, Liam and Jonathan are very alike so that will be nice to be with them. I haven't seen really any improvements yet except that supposedly oxygen is a natural laxative because Jonathan has not needed anything for his bowels I feel bad because its really enclosed and Jonathan doesn't have the most beautiful smelling poo! But because we are all in this same boat just some kids are higher functioning but some are a lot lower functioning everybody understands! So continued prayers would be great!
I really do love being here its like a whole new world, a world where everyone is "special" there is no staring, no name calling, no use of the "r" word just a bunch of kids that all want to play together and parents that can talk to each other and everyone can relate to being to tired, not knowing if we are doing enough, what does the future hold for our children and how far do you go for your child and when enough is enough! You know this therapy is for Jonathan but I think I am benefiting from it also. I am the only first timer everyone here has done this before and have seen minor to some pretty incredible improvements. Yesterday while we were in chamber I watch a mom singing to her daughter which she does every dive and her daughter has visual impairments as well as infantile spasms or seizures and this is their second time doing o2 therapy this little girl has been seizure free and yesterday while she was singing the little girl seemed to look at her momma and she was smiling and laughing it was tear jerking to say the least. There are a couple little boys who are autistic and are doing fabulous actually the parent to one of the boys was in my group and this is their second time and are staying 2 months for back to back therapy because they have seen great improvements!
Well I must go to our session please pray we continue to have successful dives!
1 comment:
I hope you are all doing well. I have never heard of HBOT....but am going to google it right now:):):)
Yes, John is still on the feeding tube. He eats now but not enough. If only marshmallows were high in fat....and had some nutritional value to them then we'd be tube free. Ha Ha!
Can't wait to hear all about HBOT. Hope you see some great results.
Post a Comment