Two of the cutest kids I know!!
We had a great 4th of July spent with family and friends, we have a party every year actually this was the 10th one I have hosted! We did have an E.R run due to my husband getting 1st and 2nd degree burns thankfully he is going to recover with little to no damage! We managed to get out of the E.R and my husband still went about the firework display! We had a couple first timers and their response was " I had no idea you had a show like this" we have it on the lake so there were a lot of boats docked in the middle waiting for the show! Leah wanted nothing to do with it and Jonathan loved it!
Jonathan had a sleep study a couple weeks ago and to our surprise they told us he has severe sleep apnea and wanting us to come in for an appointment with their ENT! We went today and this was by far the worst appointment ever beside getting a look at his vocal chords, which deemed that he has no paralyzing to them! However this ENT doctor told us his tonsils and adenoids look great so they could do the surgery and MAYBE that could help, so tell me do you really think I am going to put him through a surgery that MAY help and IF it help it will only help 1 or 2%. Give me a break no way am I doing that plus since the study I have watched him for numerous hours while he sleeps and yes he does wake up a little to catch his breathe but only because he is in a deep sleep as the doc put it its while in rem our deepest sleep cycle. So another option is to try CPAP the same idea as when he was really itty bitty so we will try this I am sure it will be unsuccessful because who wants to sleep with something stuck to their face but we will try. The nurse practitioner said it plain and simple surgery isn't going to help but maybe a bit, cpap may help but him maturing will help the best! So as I said we will try CPAP and go from there!
We are planning our Michigan Adventure trip at the end of July, Jonathan is going twice a week for horse therapy and he starts Euro-Peds July 22nd and will continue swimming but will have to eliminate horse therapy because of the intensity of Euro-Peds!
1 comment:
Carver had a sleep study done that indicated severe sleep apnea. The results indicated that about 50% was related to obstructive sleep apnea (large tonsils/adenoids), and 50% was related to central sleep apnea (brain just doesn't send a signal to breath). We had Carver's tonsils/adenoids removed and it helped significantly. He still has central sleep apnea, but it's not nearly as bad as before. He goes in for another sleep study at the end of the month. We are considering CPAP. They do have a new CPAP machine that looks a lot like a nasal cannula. So, no worse then wearing a nasal cannula at night. Maybe you could put it on after he falls asleep. The surgery wasn't too bad - the G-tube was awesome. We used a syringe to put a little water in his mouth every so ofen so things didn't dry out, but otherwise, we just tube fed him. He was back to himself in about 10 days. It wasn't too bad. You could look at our blog starting around July 3rd, 2009.
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