So heartbreaking!

Jonathan is doing great, he did have a cold and lost about a pound but am very confident he will gain his weight back. He has been very active with grandma and papa, they have spoiled him (nothing new) taking him to fowlerville fair almost everyday he really enjoyed the animals but loved the demolition derby, tractor pulls and another day od demolition derby justin and I both went to the last demolition derby and my parents weren't kidding! Jonathan smiled from ear to ear and just giggled when those engines roared he really loved watching them smash into each other laughing and jumping while daddy was standing him up on his lap. Tell me does that sound like ALL boy to you?!! They have taken him to the movies and he did really well it was an imax movie at greenfield village, my parents have a membership there so they go often, I particularly can go once or twice and I've seen enough but Jonathan loves it too so that is great.

Jonathan started feeding therapy about 2 months ago with a new therapist at a new place. His therapist was really surprised at how eager he wants to eat but gagged if you went any further than his front teeth then said he needs to be desensitized sure dude whatever you say! You can tell I was optimistic about anything working because we have tried what I thought of as everything! Well fast forward to now and Jonathan more then ever wants to eat, we will get something to go and Jonathan watches from his carseat and cries he opens his mouth licks his lips anything to get food in his mouth. So as we pulled over I got him out and I was eating a cheese omelet and Jonathan ate all the gooey cheese and just loved it but this happens ALL the time we have even stopped him from being in his high chair when we eat because he doesn't get that whatever is going on in his belly won't let him have more than a couple ounces even though he might reflux he wants to do it again and cries because he wants real food and clearly as of right now he can take pudding like texture and he won't touch baby food not even stage 3 he wants our food! Well yesterday at his feeding therapy Jonathan ate 1/2 butterscotch pudding he likes flavor no vanilla or chocolate he wants lemon, butterscotch, carmel(pudding of course) Stephanie his o.t can now get her fingers all the way back to his molars no gagging no reflux just sits there looking at her (as we are clapping and praising him) as to say "oh this is what you wanted me to do , no biggie" and opens his mouth a little bigger he has done this for the last couple weeks with this week being the best. So next week we will be trying crushed graham crackers in pudding to change a little of the texture. He still drinks about 3-4 ounces of water a day by mouth on top of his blended high calorie smoothies(smoothies by g tube). He also loves sweet tea, thats my boy right there!!! I tried giving him propel a flavored water with just a tiny bit of calories. SO I asked him do you want water, I wasn't lying it is water just a little berry flavor he eagerly opened his mouth happy to take some, as I put it in his mouth he looked at me as though I was poisoning him and preceded to spit it out he thought it was the grossest thing ever he didn't let me hold him the rest of the night thank GOD it was in the evening I felt terrible. I'll let him stick with water sweet tea and a little bit of cola, all I can say is I tried! SO hopefully with prayer and lots of it, he will be able to take the crushed crackers and we can move to bigger things.

It's a......

GIRL!!!

20 weeks along and going strong, I went today to make sure everything looks good and baby looks great she is getting big and had her feet and hands in her mouth. In two weeks they will be doing measurements and weight. I am starting to get nervous any little twitch or cramp I just start praying! This little girl has a lot more baking to do!

Look at my boy, I am so proud!

Ok so I said we were getting a kid walker, well the p.t thought lets try the pony walker and see what happens. I had tears, he was so happy when grandpa put him in it. Jonathan has not really attempted to walk but look at him his head is held high just a rest behind his head he has it up without my help, he was standing!!! Now don't get me wrong he got very tired after about 10 minutes and his head did plop down but 10 minutes is huge, humungous, ginormous o.k you get the point, I am just so amazed at my little man!

Hippo Therapy, My big 30th, Fourth of July and Walking N Rolling

Jonathan is doing great with horse therapy his legs are very loose which is helping with his walking, his head control is still loose however both p.t and o.t and of course us have noticed when his head falls he does control it to bring it back up! He hates wearing his helmet so usually halfway through its off his head and he is so happy.

I had my big 30 which my husband did a fantastic job at planning, it was on the fourth so we had a great firework display too. Jonathan was is a great mood the whole day he is now getting another molar so he has been a little pukey and whiny.

Jonathan is getting a walker I am so thrilled about this. He has been "walking" with our help of holding his upper half for a good while so our p.t has insisted on getting him a Kid Walker I seen it a couple weeks ago and it is so cool! The wheels light up and it fits Jonathan pretty good he might have to grow another inch but since it takes 3 months to get it we mine as well get it now plus our p.t is going to let us borrow one for the time being. Jonathan has been getting around the house by using his feet he plants them on the floor and pushes off he is getting really good at this we leave him for a minute and he is in a completely new area. He also is rolling not all the time but doing better then he has he hates being on his belly so if you hear him cry you usually know he ended up on his belly!


We just ordered Jonathans glasses he looks like a little professor and they will be here in about 2 weeks. He continues to do really good at responding, we ask him if he wants water he opens his mouth and he is taking it by sippy cup, we ask him what a doggy does and he sticks out his tongue and pants like a dog (that is what his new speech therapist taught him) he is now saying "hi" when HE wants to but does do it for the therapists and of course new girls he meets(my little flirt)! We are now starting to go to a new speech therapist she is great, we are going to work on switches for him and practice more speech he will mimic what the therapist is saying ex. she will say bu bu bubbles then proceed to blow bubbles which is one of his favorite things in the world and then you see Jonathan put his lips together like trying to do this and using the switches has actually been proven to want kids that are going to be verbal use their voice sooner, I don't know but he says hi and we only used a switch a handful of times!

Check out this picture of Jonathans hair, its getting out of control people will ask if we cut his hair like this, uh no its a natural mohawk!





About the baby, I am still pregnant and showing, the diabetes is killing me but oh well. We went in for our 18 week survey and all measurements were great actually the baby is weighing 9oz thats the 70th percentile yippee!! Oh for any of you that want to know the sex I will say in my next post in a few days don't you just love suspense!

A great story

This is actually coming from another blog and I just loved it and thought I would share..

A baby asked God, "They tell me you are sending me to earth tomorrow, but how am I going to live there being so small and helpless?"

"Your angel will be waiting for you and will take care of you."


The child further inquired, "But tell me, here in heaven I don't have to do anything but sing and smile to be happy."
God said, "Your angel will sing for you and will also smile for you. And you will feel your angel's love and be very happy."


Again the child asked, "And how am I going to be able to understand when people talk to me if I don't know the language?"
God said, "Your angel will tell you the most beautiful and sweet words you will ever hear, and with much patience and care, your angel will teach you how to speak."


"And what am I going to do when I want to talk to you?"
God said, "Your angel will place your hands together and will teach you how to pray."


"Who will protect me?"
God said, "Your angel will defend you even if it means risking it's life."


"But I will always be sad because I will not see you anymore."
God said, "Your angel will always talk to you about Me and will teach you the way to come back to Me, even though I will always be next to you."


At that moment there was much peace in Heaven, but voices from Earth could be heard and the child hurriedly asked, "God, if I am to leave now, please tell me my angel's name."


"You will simply call her, 'Mom.'"

Busy, Busy, Busy

For Jonathan that is! Jonathan has had a very busy two weeks to say the least. My parents have really been helping out and now I can't pick him up for the remainder of the pregnancy which has proven to be very difficult but once he see's grandma or grandpa he is a happy dude knowing he is going to be picked up. Well my parents have taken him to a fair that was in hamburg which is basically down the street, Jonathan rode a camel with my brother and then held a baby alligator with grandpa and my brother. I was a little freaked out when I saw the pictures and it looked to me Jonathan was a bit confused about the alligator (they do rubber band the mouth shut) but he had fun. We have gone to two graduation parties and he loves people so him getting shuffled around was a blast, he loves ice cream and I love giving it to him, my brother thought it would be great to give him cotton candy in which Jonathan thought it was the most disgusting thing out there and spit it out while giving my brother the are you crazy giving me that, look! Then it was off to downtown Detroit for a walk by the river, and going to Detroit institute of arts. Then yesterday was the big international fireworks on the Detroit river so my parents took him to Canada for the festival which they didn't stay long due to the weather being 98 degrees but they went into their hotel room which was facing the river and he stayed there splashing in the pool till firework time then went to watch them but Jonathan had already fell asleep! So for the last two weeks Jonathan has been sleeping really good my parents really are wearing him out and he LOVES it he does not like being home unless he can go swimming outside then he is a happy camper! I believe today they are going to the zoo I will have to give them my camera so I can get some picture because they haven't taken any!! Then in August my parents are taking Jonathan for a week to Orlando my favorite place in the world!

I did get my cerclage done this past tuesday the actual stitching didn't hurt I talked with the anesthesiologist the whole time about Jonathan its funny how many people don't realize the extent of cp, I say my son has cp and its oh I'm sorry and they think he is just sitting in some wheelchair left alone and is totally handicapped. Yes he does have handicaps but he is the happiest dude around very responsive and loves to watch Blues Clues! Then what really gets them is when I tell them he rides a horse for therapy I usually get some weird looks then of course I have to say there is a therapist that rides with him but just in 3 sessions Jonathans legs are so lose I hate missing this week but I have to take it easy until friday then I can start doing things as normal except I can't pick Jonathan up! I was in pain yesterday I could hardly walk and had some minor cramping, today I am feeling better no cramping and I am going to do a little more walking, some retail therapy sounds good for me! So as long as I'm up to it we are leaving tomorrow to go to Ludington on lake Michigan so the boys can go fishing and I can relax it should be a nice weekend up there too! Then the following week is the 4th our annual party which I am so not ready for, Justin is we have both our jetskis working and Justin just bought another tube that you stand up on which I would have loved to ride however I will have to wait till next year and I am missing wakeboarding too, I'm not the best but I love it! We have lots of fireworks its nice we have a pyrotechnic in the family so we will all be on the boats while the fireworks go off, we are a pretty competitive family so everyone on the lake trys (I said trys) to out beat us it hasn't happened so far but we'll see!

No cerclage yet! But I do have gestational diabetes, ugh!

So my cerclage was cancelled after 7 pokes of trying to get an i.v started and 4 additional shots of lidocaine! There was an emergency C-section that took a lot longer than planned so I could have continued to wait (we were already there from 10am till about 5pm) and starve or I could go home and eat. So we went home not before stopping at my favorite sub shop Dibellas oh I love that place!

I also have g.diabetes and this for me is probably the hardest thing in the world to control! I love I mean LOVE pasta, chips, bread oh I am getting hungry just thinking of these things! So to say this is a hard thing to control is an understatement but I am with 4 shots a day of insulin! I really don't fit the profile of g. diabetes says the doctors I'm 5'7 140 lbs (remember I'm pregnant) and interesting enough I did not have it with the boys I was however a beautiful 123 lbs and gained to 140 when I delivered them so the docs are thinking maybe its weight but I am not by far obese so I can't believe its because I gained 20 some pounds but another guess is I will have diabetes even after I give birth (to a 38 weeker of course)
Do you realize I am probably ice creams biggest fan and do you realize its summer and ice cream and summer go together! So I am allowed a little just can't go to extreme it is so hard when your pregnant and craving ice cream ughhhhhh! But I am doing this and I am doing this for my growing beautiful baby inside but its still hard! So I am still getting the cerclage this coming tuesday and July 9th we find out what our beautiful baby will be!